Episode 4

full
Published on:

15th Jan 2026

How to Stay in Work While Caring for a Parent with Dementia

Synopsis

What does it really take to care for a parent with Alzheimer’s while holding down a full-time job?

In this episode of Do I Sound Like I Care?, Louise speaks with Sam, an unpaid family carer whose mum was diagnosed with Alzheimer’s over a decade ago. Sam shares her experience of navigating diagnosis, inadequate follow-up care, managing finances, surveillance for safety, and the harsh realities of council-provided care.

She also explains how she has managed to stay in work through routine, honesty, and a supportive employer, and why work can sometimes feel like respite rather than pressure.

This is a candid conversation about exhaustion, isolation, dignity, humour, and survival, and why carers need better systems, understanding, and support.

This episode was filmed while being followed by BBC Morning Live, highlighting the growing national conversation around unpaid carers.

If you are caring for someone with dementia, or supporting someone who is, this episode is for you.

00:00 Introduction and BBC filming context

01:00 How Louise and Sam met through their mums

02:20 The importance of day centres and carer support groups

03:15 Recognising early signs of Alzheimer’s

04:40 Diagnosis and being discharged with no follow-up

06:00 Losing independence with money and food

07:10 Using home cameras to keep mum safe

08:00 COVID and moving mum in full-time

09:20 Council care experiences and systemic failures

11:20 Being charged for care that didn’t happen

13:00 The breaking point and ending council care

14:00 Switching to private care and why it changed everything

16:00 Role reversal and increasing dementia progression

18:40 Staying in work while caring full-time

21:00 Why work can feel like respite

22:20 Supportive managers and carer passports

24:00 The stigma of being a carer at work

26:00 Why caring is not the same as parenting

28:00 Wandering, safety, and public misunderstanding

31:00 Finding other carers and shared understanding

33:00 Isolation, loss of identity, and loneliness

35:00 Small moments of joy and reclaiming self

36:00 Facing the future one day at a time

37:00 Closing reflections and thanks

Show artwork for Do I Sound Like I Care? with Louise Lynch

About the Podcast

Do I Sound Like I Care? with Louise Lynch
@CarerPodcast
Welcome to "Do I Sound Like I Care?" the unfiltered podcast dedicated to unpaid family carers. Join your host, Emmy Award-Winning former documentary filmmaker turned family carer, Louise Lynch, as she imperfectly navigates the tumultuous journey of caring for her mother, Teena, who was diagnosed with Alzheimer’s in 2021.

In a society that often overlooks the challenges faced by unpaid family carers, Louise brings an irreverent and authentic perspective to the forefront. With her career in tatters and lacking a creative outlet, she dives headfirst into the universal struggles of unpaid family carers, exploring how they cope in a world that falls short on the necessary resources.

In each episode, Louise sits down for a candid half-hour chat with fellow unpaid family carers. Together, they share stories, swap tips, and recount the highs and lows of their caregiving experiences. The magic lies in these peer-to-peer interactions, offering listeners a genuine authenticity and the comforting realisation that they’re not alone.

Whether you’re a seasoned carer or just stepping into this demanding role, "Do I Sound Like I Care?" provides a sanctuary of shared experiences, laughter, and heartfelt discussions.

Explore Topics Such As:

Navigating the healthcare system
Balancing self-care and caregiving responsibilities
Finding humour in the midst of challenges
👂 Why Tune In?
Discover the unifying power of shared experiences, gain practical tips, and find solace in the humour that arises from life’s caregiving journey.

🌐 Connect With Us:

@CarerPodcast
www.doisoundlikeicare.com

Viewer discretion: Some of the language may cause offence unless you are a carer. Be prepared to have a laugh and a cry!

Subscribe now to "Do I Sound Like I Care?" on YouTube or your favourite podcast platform, and join Louise and her guests in embracing the messy, emotional, and sometimes absurd ride of unpaid family caregiving. Because sometimes, the best way to cope and share a laugh in the face of adversity is to ask, "Do I sound like I care?" .